My dad has colon cancer with metastases to liver and bone, diagnosed at Stage 4 in late April 2012.
It started off as a backache which wouldn’t stop even with massages and medicine, he was admitted to hospital to do a scan, and they discovered that the bone was cracked. Which was puzzling because he said he didn’t have a knock and didn’t fall. I turned to my trusted friend the internet to find what could it be. And I didn’t like what I found, not a little bit.
Most of the signs point to cancer, though it couldn’t be determined from what origin. Well, they were still doing tests and I didn’t want to scare myself or others and so I kept it quiet. I didn’t hear him complaining of having any problems till the backache so I was kinda hoping it was something else besides that.
I couldn’t say I wasn’t forewarned when the test results came back, but the seriousness of it was quite a shock. It was Stage 4 Colon Cancer which had already metastasized to his bone and liver, it was everywhere actually.
Stage 4…. who would have thought. It sounded shocking, and I should have been in shock, but I wasn’t. The next few days went by like nothing out of the ordinary had happened, maybe the news just hadn’t gone to my brain yet. Either that or I was blocking out reality like I always do. I had my aunties to thank for arranging everything after that, and he was scheduled to undergo chemo. Being in a public hospital meant that he had to queue to get the help that he needed. Couldn’t remember what it was the consultation or the chemo itself, that we had to wait a few months per treatment.
Here was a dying man with Stage 4 cancer, and he had to wait a few months to get help. Few months. Isn’t it such a joke that something like this is happening in Singapore where medical care is supposed to be world class? I understand that there are many others who would need that care and thus we had to wait, but few months? Incomprehensible. In the end, it was decided that we would switch to private care, and was recommended to see Dr Ang Peng Tiam, the Director from Parkway Cancer Centre (PCC) at Mount Elizabeth. I didn’t know it at the time, but after some research, it turns out he is quite a famous doctor well known in the oncology circle. Even our Prime Minister was treated by him years ago.
Under private care, everything went fast and he was admitted and underwent chemo the next day. The day he was admitted was the day it finally dawned on me, my father is seriously sick, and I could lose him anytime. The realisation was hard to take, and seeing him on the hospital bed made it so so real, far too real. He was in much pain from the backache at this point, and it was heartbreaking to see him in pain, but there was nothing much we could do except put his life in Dr Ang’s arms and care. Spent a few overnights in hospital with him, and it was no fun as there wasn’t even a makeshift bed we could rest in. But my, our suffering was nothing as compared to what he was going through.
The days following that were hectic making arrangements for him, and to say it was tiring is an understatement. We were all worried, and scared and hopeful that somehow he will be cured despite the bleak prognosis. It was not all plain sailing along the way. The very first session of chemo he had, he vomited black stuff all over the room right after they started it.
Next came his paralysis. Yes, paralysis. He was ok before he got admitted. It was just after the vomit episode that he couldn’t feel anything in his legs the next day. There was real panic at this time. No feeling in the legs wasn’t a good sign and it must have been terrifying for him, but never once did I hear him complain. They sent him for a scan immediately and found out that the cancer cells had indeed spread to the backbone, into the nerves and chewed them out so that’s why he couldn’t move his legs. He underwent radiotherapy straight after the scan, as the doctor put it, “So we can kill the cancer cells and hopefully catch the spread in time so there might be a chance he can still walk.” After a few rounds of radiotherapy and chemo, we got the diagnosis from the doctor.
“We were not able to kill the cancer cells in the back in time, sorry to say that the only chance your dad will ever walk again would be if there was somehow a miracle.”
Hearing that being said, it felt like the wind was knocked out of me. My dad would never be able to walk again. He would be confined to a bed and wheelchair. What worried me most at the time was not how troublesome it would be to look after him, but how he felt after hearing that. Having cancer was a blow, but at least there was a chance of curing it. Being paralysed on top of having cancer, how is someone supposed to feel? Despair? Hopelessness?
The horror story just doesn’t end there. I can’t remember the chronology of events anymore, but it wasn’t long after his cancer diagnosis and paralysis that something even more horrible happened. There was a lump on his right arm that slowly grew through the days and it was kinda the size of half an apple? He was having a change of clothes in the hospital one night, and all of a sudden we heard this loud ‘POP’ sound from nowhere just as he was raising his arms to get the sleeve in. Shocked us quite a bit, but after looking around, feeling his arm and finding nothing of the ordinary (except the lump), we just thought he or someone beside him had hit the tissue box with the elbow or something thus making that hollow loud sound and did not think much of it anymore.
I remember that night was my night again to stay overnight with him. He wasn’t comfortable that night, or any night for that matter (the cancer was giving him pain) but nothing much we could do except give him some pain medicine, or even morphine at some point. The next morning, he complained of having discomfort and aching in his right arm (from when/where we heard the pop sound) and couldn’t lift it up as it was hurting him. The pain from a fracture should have been unbearable but to think he felt nothing when it happened. Just shows how much pain meds he was on for his cancer then, to not feel a thing till the next morning. At this point, my brain was in overdrive thinking what it could be, it was getting worrying and after telling Dr Ang about the previous night’s event, he sent him for an x-ray.
After the x-ray, he was sent up back to his ward. Me and my aunty then went to see the x-ray doctor to see what was the source of the pain in his arm. My aunty sat down while I stayed standing up, was actually too nervous to sit. He started out telling us that the lump on his arm was actually a cancer tumor lump. I wasn’t shocked to hear that, it was actually quite very little guesses as to what it could have been but the thing is, that is not a good thing to hear. It actually meant that the cancer was spreading, and fast. From the colon, it had already spread to his bone, backbone, liver, and now all the way up to his arm?
I haven’t said anything about the liver, but yeah, his liver was also affected and on the CT and PET scans, the whole liver was shown to be shining bright. What did it mean? It meant that his whole liver (more than 90%) was already occupied by cancer cells. Liver….we only had one of that, and if it was to fail, no guesses as to what would happen? According to Dr Ang, the more urgent/pressing issue at the moment was to stop the continuing spread of the cells around the body and the liver was to take second place to that. We didn’t argue, he was the expert and we were going to let him do his stuff and what he said made sense anyway. At his present state, they could only give him a general chemo med as he was too weak to endure both a general and liver-targeted treatment and there was no med that could do both at the same time.
Back to the issue of the arm.. As I was mentioning, the Dr told us it was a tumor lump and then he continued saying that he had discussed it with Dr Ang and they had came to the same conclusion. The spread of the cells to the arm was a very very bad situation and then came the sucker punch.
“Based on his current condition, he will probably only have about a year left.”
Damn, never ever saw that coming. Up to that point, even though we were worried and scared, we still have had some news that the chemo was helping a little for his recovery. Now, having heard his primary Dr say that he had a year left to live, it completely broke me in places unimaginable. Unsurprisingly, my aunty was crying at this time and I was still standing there trying damn hard not to let the tears roll. The heart pain though, was unbearable. I walked out of the room to get some air, but eventually I couldn’t stop the tears too. My father was dying, is dying and there was not much time left. Oh gosh, how could this have happened? How did so many things happen in such a short time, and so suddenly?
I spent the next few days and nights crying, sometimes for no reason at all. I so wanted to just drop dead, my heart was hurting so bad. I had some decisions to make at that point, and I was thinking of quitting my job to look after him, to just spend time with him. Talking to my aunty, she advised me not to do that, as they could look after him instead, or hire a maid so we could still continue on our everyday lives. I talked to my mum about it and she also advised me not to. Nonetheless, I still had to let my company know about the situation and hoped they would understand if I had to take some time off work (I had just started working at UOC just 1 month prior to his diagnosis). I would have understood if they decided I was too much of a burden and wanted to let me go, since I was going to ask to take maybe a few weeks to months off if it was indeed true that my dad only had months to a year to live.
To my surprise, Alex was very understanding and said he understood my situation and we would see how things lead. I had Camy with me when I talked to Alex as my emotions were too raw to be able to say anything regarding my dad’s condition and she did most of the talking on my behalf. I was debating whether to let Shawn know (since he was quite intimidating and scary and I didn’t know him that well or was as close to him), but in the end decided that since I was also working under him for MWF, I had to let him know somehow.
A few hours after telling Alex and controlling my emotions, I walked up to Shawn’s room and timidly said to him, “Shawn, 我有东西要跟你讲。” He looked at me waiting for me to talk, but there was people in the room and I didn’t want to say anything to anyone else at the moment. So i asked if we could talk somewhere else. The pantry was occupied and so we ended up in Ety’s room. Lucky he had the sense to walk to Ety’s table while I stood near the door (make it easier for me to talk instead of having to look at him in the eye). And so I told him the situation and was half expecting him to act cool and cold about it as his impression always gave. He started with ‘Oh’ after telling him of my dad’s condition and asked a few questions about what kind of cancer and how was his condition right now and did not say anything else till I was done with saying I may need some time off. He said that it was alright, he could get JM my lab boss to do my work if I wasn’t around and I wouldn’t have to worry about it. Here comes the heartwarming part. The next thing he said was, ‘I know just how you feel.’ And proceeded to tell me about the elder sis he lost to pancreatic cancer a year back. Our conversation ended after a bit of small talk with him having said a ‘hope he gets well’.
That moment he said, ‘I know just how you feel,’ it is a moment I would never forget. Turns out under his cool exterior, there lived a gentle soul. A gentle soul who managed to let me feel he actually cared. Its because I got to see that side of him (when everyone else said that he is actually heartless and wouldn’t care) that let me to respect him and defend him whenever anyone else said anything about his shortcomings. No matter what anyone says about him, no matter how fierce he may be sometimes, I would still treat him like a boss in the office, and like a brother I never had, out of the office.
It’s 11.30, there’s work tomorrow, and it’s time to sleep. I’ll continue this another day.
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